Assesment of Thalassemic Children’ Parents Knowledge Regarding Thalassemia


  • Sehrish Naz Khyber Medical University
  • Anayat Jan Khyber Teaching Hospital
  • Shabnam Khyber Medical University



Knowledge, Parents, Thalassemia, Thalassemic Children



To assess the thalassemic children’s parents’ knowledge level regarding Thalassemia.


A cross-sectional descriptive study was carried out in two tertiary care hospitals in Peshawar from February 2019 to July 2019. Informed consent was taken from 100 participants before data collection. A validated and reliable questionnaire was used as a data collection tool. SPSS version 22.0 was used for data analysis.


Out of 100 participants, the majority (n=77) were female. The majority were unemployed and 47 were illiterate. Most of the parents had poor knowledge regarding thalassemia 28% were unaware that patients who have thalassemia are anemic, 89% had the opinion that thalassemia cannot be treated only with medications, 78% had replied to thalassemia cannot be treated with surgery and 56% were not aware that chelation is a treatment modality for thalassemia. The mean knowledge score of the total participants regarding thalassemia was 16.65±2.94.


Based on findings there is ample need for attention by the government and health care providers to provide education to the masses and must have to launch an awareness campaign about thalassemia. Furthermore, government and health care providers and society may encourage the preventive program to decrease the prevalence of this disease in Pakistan.

Author Biographies

Sehrish Naz, Khyber Medical University

Lecturer INS,
Khyber Medical University

Anayat Jan , Khyber Teaching Hospital

Charge Nurse
Khyber Teaching Hospital

Shabnam, Khyber Medical University

INS, Khyber Medical University


Naveed S, Dilshad H, Hashmi F, Khan A, Salahuddin N. Awareness about thalassemia: a survey report. Mintage j. pharm. med. sci. 2014;3:2-18

Pal SA. Premarital health and social issues in Pakistan. J Pak Med Assoc 2017;67(7):973

Basu M. A study on knowledge, attitude and practice about thalassemia among general population in outpatient department at a Tertiary Care Hospital of Kolkata. J Prev Med Public Health. 2015;1(1):6-13

Gul R, Wazir JD, Rehman S. Different Types of Complications in Patients Suffering from B-Thalassemia (Thalassemia Major). Journal of Gandhara Medical and Dental Science. 2017 Sep 1;4(1):28-40

Arif F, Fayyaz J, Hamid A. Awareness among parents of children with thalassemia major. J Pak Med Assoc. 2008;58(11):621-4

Suzanah A, Zulaiha M, Faszrul A, Kamaruzaman W. Thalassaemia: a study on the perception of patients and family members. Med J Malaysia. 2011;66(4):327

Inamdar S, Inamdar M, Gangrade A. Stress level among caregivers of thalassemia patients. Community Med. 2015;6(4):579-8.

Pouraboli B, Abedi HA, Abbaszadeh A, Kazemi M. The Burden of Care: Experiences of Parents of Children with Thalassemia. J Nurs Care Qual. 2017;6(2)

Miskam HM, Juhari R, Yaacob SN. Stress and quality of life among mothers with thalassemic children in Malaysia. Int J Stud Child Women Elder Disabl. 2017;1:176-84

Mashayekhi F, Jozdani RH, Chamak MN, Mehni S. Caregiver burden and social support in mothers with β-thalassemia children. Glob J Health Sci. 2016;8(12):206-12

Jeesh A, Aser Adnan Y, Al-Haboub MA-B. The Effects of Patients' and Care-Givers' Knowledge, Attitude, & Practice (KAP) onQuality of Life Among ThalassemiaMajorPatients' in Damascus-Syrian Arab Republic. Eur. Sci. J. 2018;14(12), 308

Khairkar P, Malhotra S, Marwaha R. Growing up with the families of β-thalassaemia major using an accelerated longitudinal design. Indian J Med Res. 2010;132(4)

Maheen H, Malik F, Siddique B, Qidwai A. Assessing parental knowledge about thalassemia in a thalassemia center of Karachi, Pakistan. J. Genet. Couns. 2015;24(6):945-51

Haq NU, Masood N, Nasim A, Riaz S, Saood M, Yasmin R. Assessment of disease state knowledge and awareness among the guardians of thalassemia patients attending different health facilities in Quetta, Pakistan.2017; 20(5) 236

Ishfaq K, Hashmi M, Naeem SB. Mothers’ awareness and experiences of having a thalassemic child: A qualitative approach. Pak J Life Soc Sci. 2015;2(1):35-53

Ghafoor MB. Level of awareness about thalassemia among parents of thalassaemic children. J. Rawalpindi Med. Coll. 2016;20(3):209 11

Shahzad A, Rafiq N, Ullah I, Asad MJ, Ahmad MS, Waheed U. Knowledge, attitude and practices (KAP) of the families of β-thalassaemia children in thalassaemia centers of Rawalpindi and Islamabad, Pakistan. Blood transfusion (BT). 2017;92:22.4

Ali S, Saffiullah MF. Awareness of parents regarding beta thalassemia major disease. Khyber Med Univ J. 2015;7(2):72-5

Ishaq F, Hasnain Abid F, Akhtar A, Mahmood S. Awareness among parents of ββ-Thalassemia major patients, regarding prenatal diagnosis and premarital screening. J Coll Physicians Surg Pak 2012;22(4):218-21




How to Cite

Naz, S., Jan , A. ., & Shabnam. (2022). Assesment of Thalassemic Children’ Parents Knowledge Regarding Thalassemia. Journal of Farkhanda Institute of Nursing And Public Health (JFINPH), 2(1), 41–45.